If your family is affected by Tay-Sachs, Sandhoff or a Rare Disease, you are not alone.

Rare Find Foundation is here to help from the day of diagnosis through day-to-day care, tough

end-of-life decisions and beyond.

With an incredible network of Clinical specialists to provide expertise, resources to provide guidance and families to share experiences, rest assured there is a community here to support you when you need it.


We can help advocate to ensure you get the best equipment as fast as possible, provide respite trips and attend our family conference.

Rare Find Foundation is committed to helping Tay-Sachs and Sandhoff children and their families. We are here for you.

Our children


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