Find out more about the diagnostic journey, practical information on how to care for your child or loved one, the benefits of palliative care, a glossary of terms you may come across, and stories from other families.
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Tay-Sachs and Sandhoff Diseases: a practical guide for families and carers
Receiving a diagnosis of Tay-Sachs or Sandhoff diseases in your child or loved one may be one of your most challenging experiences. Rare Find Foundation has developed a free information guide with the hope that it provides you with information, support and reassurance throughout your journey.