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If you would like to reach out to Rare Find Foundation to share your story, organise a fundraising event or any other reason, please get in touch.

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    Request a copy of our guide

    Tay-Sachs and Sandhoff Diseases: a practical guide for families and carers

    Receiving a diagnosis of Tay-Sachs or Sandhoff diseases in your child or loved one may be one of your most challenging experiences. Rare Find Foundation has developed a free information guide with the hope that it provides you with information, support and reassurance throughout your journey.

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      Booklet 1 - IntroductionBooklet 2 - Tay-Sachs and Sandhoff DiseasesBooklet 3 - Receiving a DiagnosisBooklet 4 - Caring for your child or loved oneBooklet 5 - Palliative and end of life careBooklet 6 - GlossaryAll of the above

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