Public and private health care
In Australia, both public (government) and private organisations provide health care. The type of highly specialised medical care that is provided for individuals with Tay-Sachs and Sandhoff diseases is provided through the public system.
The Australian Government supports the cost of healthcare under the Medicare system. If you have a Medicare number, you are entitled to free treatment as a public patient in a public hospital. You may also receive free or discounted treatment when seeing your GP, a specialist and some allied health professionals.
It is important to note that you are still entitled to free care in a public hospital, even if you have private health insurance.
The National Disability Insurance Agency (NDIA), is the Australian Government agency responsible for implementing the National Disability Insurance Scheme (NDIS). The NDIS provides funding to Australians who have a permanent and significant disability, and also provides information and linkages to services in the community.
If your child or loved one has Tay-Sachs or Sandhoff disease, they will likely be an NDIS participant. As such, their Plan will cover the costs of allied health care required to achieve their goals.
See the Financial support section for additional information.