The NDIS is a national scheme, which means that all Australians are able to access it.
Access to the NDIS is not income tested. This means the supports you receive are not based on your household earnings, unlike some other Australian Government support programs.
When deciding whether someone meets the criteria to access the NDIS, the NDIA will first consider whether a person meets the age and residence requirements. If they do, the NDIA will then consider whether that person meets either the disability or early intervention requirements.
Children aged 0-6 years may receive support under the NDIS through the Early Childhood Early Intervention (ECEI) approach. It is important to know that the infantile forms of Tay-Sachs and Sandhoff diseases are both on List D – Permanent impairment/Early intervention, under 7 years – no further assessment required.
If your child or loved one is around age 6 years and 9 months, they are no longer eligible to qualify through the Early Childhood Early Intervention approach. You will need to contact the NDIA for an application form. After receiving your application form, you have 28 days to return it. Contact your Specialist and Occupational Therapist who can provide reports to support the application. Your Specialist only needs to confirm the diagnosis in a letter. The Occupational Therapist will conduct a range of tests that will help to inform the Local Area Coordinator about the needs and goals of your child or loved one. Both Tay-Sachs and Sandhoff are on List A – Conditions which are likely to meet the disability requirements in Section 24 of the NDIS Act. This means whilst the process will take a little longer, you should be approved for a NDIS plan. If not, please contact Rare Find Foundation to advocate on your behalf.
This means a child living in Australia who has been diagnosed with the infantile form of Tay-Sachs or Sandhoff disease automatically meets the disability access criteria.