Resources

Palliative Care Australia

What is palliative care? https://palliativecare.org.au/what-is-palliative-care

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Tay-Sachs and Sandhoff Diseases: a practical guide for families and carers

Receiving a diagnosis of Tay-Sachs or Sandhoff diseases in your child or loved one may be one of your most challenging experiences. Rare Find Foundation has developed a free information guide with the hope that it provides you with information, support and reassurance throughout your journey.

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