As the diseases progress there will be varying problems with mobility.
In a mobile child, balance and mobility may become a problem. In this case, safety in and around the home environment should be of the utmost importance in order to minimise the risk of injury and falls.
Simple precautions around the home environment can also help. These may include ensuring that your child or loved one wears suitable and appropriate footwear, and that trip hazards are removed.
Seeking advice from allied health professionals
Taking advice on modifications and equipment can help provide individualised solutions to help your child or loved one to get the most out of life.
Allied health professionals, such as an Occupational Therapist or Physiotherapist, will be able to provide advice on overcoming mobility issues. You may find it valuable to initiate these conversations, including with your NDIS Local Area Coordinator (LAC), well in advance of anything being needed, as it can take time to make arrangements. Examples of how they might be able to assist include:
- An Occupational Therapist may be able to provide advice on alternative ways of doing day-to-day things, as well as the best way to adapt your home for ease, comfort and safety.
If your home environment has stairs, they may be able to advise on the need for stair rails or a lift.
- A Physiotherapist may be able to plan an individualised program with suitable exercises to assist with posture and coordination.
They can also give advice on walking aids, splints or braces for support.
Once a person is unable to move by themselves, they can offer advice on safe ways of moving or handling that will avoid injury to either the person being moved or their carer.