What We Do

Rare Find Foundation is the first of its kind in Australia. It was created to ensure that every Australian diagnosed with Tay-Sachs or Sandhoff disease, and their family or carer, can receive much-needed support that is relevant to where they live. We will also support, to the full extent we are able, others with rare diseases for whom there is no support network.

In alignment with the National Strategic Action Plan for Rare Diseases, Rare Find Foundation aims to enhance: