The Board

Rare Find Foundation is proud to have a diverse representation on it's board, all of whom are are brought together by their commitment to supporting families affected by GM2 conditions and to find a cure 

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Anna Pak Poy 

Chairperson

Anna is the mother of Sebastian Coupar and the Founder of Rare Find Foundation. Anna brings personal and first hand experience of what it means to be affected by Tay-Sachs through the caring for and loss of her son, Sebby.

 

She has attended the European Tay-Sachs and Sandhoff disease family conference in Germany (ETSCC), to learn and to help establish the Rare Find Foundation in the broader community.

​Anna also brings business acumen and expertise to the foundation, as a successful company owner and Managing Director.

Email: anna@rarefindfoundation.org

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Nicholas Smith

MBBS (Hon), DCH, FRACP, PhD

Dr Nicholas Smith (MBBS(Hon), DCH, FRACP, PhD(Cantab)) is a Paediatric Neurologist specialising in paediatric and adult neurometabolic diseases and currently heads the Department of Neurology and Clinical Neurophysiology at the Women's and Children's Hospital, Adelaide, South Australia. 

 

He maintains a conjoint academic appointment with the University of Adelaide, School of Medicine and maintains a basic sciences, translational and clinical research programme that strives to inform the development of novel therapeutic approaches for lysosomal and related neurodegenerative disorders; through which, he has been privileged to meet and assist patients and their families impacted by GM2 Gangliosidosis, from Australia and the wider international community.

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Kate Ellis
Board Member

Kate Ellis is a politician, who represented the Division of Adelaide in the Australian House of Representatives for the Australian Labor Party from 2004-2019.

Kate is passionate about campaigning for the rights of children's access to healthcare and health services.

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Olivia Nassaris
Board Member

Olivia has an extensive background in both communications and advocacy in aged care, higher education and nursing.

 

Her role as CEO of Parkinson's SA has given her strong expertise in business development, key strategic partnerships, philanthropic grants and communications.

Olivia is passionate about community health and improving the lives of those with neurological diseases.

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Adam Carpenter
Board Member

Founder and owner of both Toolbox Graphic Design and Prohibition Liquor Co, Adam juggles a successful business of 15 years in brand communications, and a growing internationally-awarded spirits brand, both from an inner-city distillery (with two busy bars) in Adelaide’s CBD.

 

Adam is also a former State President and National Treasurer of the Australian Graphic Design Association, a founding member of the South Australian Spirit Producer’s Association, whilst serving on multiple boards, from schools, to fundraising charities and startups.

 

Adam brings 25 years' experience in design, branding, marketing and business strategy and a strong track record of growing successful companies and teams.

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Tim Watts
Board Member 

Tim has a background in public policy development and implementation at a federal and state level. 

He believes in the power of advocacy and the importance of equal access to support and services.

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Senator Marielle Smith
Foundation Patron

With extensive experience in public policy and a passion for our cause, Senator Smith provides strong support and is determined to create positive change for those affected by Tay-Sachs and Sandhoff diseases across Australia.

©2019 by Rare Find Foundation