The Board

Rare Find Foundation is proud to have a diverse representation on it's board, all of whom are are brought together by their commitment to supporting families affected by GM2 conditions and to find a cure 


Anna is the mother of Sebastian Coupar and the Founder of Rare Find Foundation. Anna brings personal and first hand experience of what it means to be affected by Tay-Sachs through the caring for and loss of her son, Sebby.


She has attended the European Tay-Sachs and Sandhoff disease family conference in Germany (ETSCC), to learn and to help establish the Rare Find Foundation in the broader community.

​Anna also brings business acumen and expertise to the foundation, as a successful company owner and Managing Director.


Anna Pak Poy Chairperson

Nick Smith.png

Dr Nicholas Smith (MBBS(Hon), DCH, FRACP, PhD(Cantab)) is a Paediatric Neurologist specialising in paediatric and adult neurometabolic diseases and currently heads the Department of Neurology and Clinical Neurophysiology at the Women's and Children's Hospital, Adelaide, South Australia. He maintains a conjoint academic appointment with the University of Adelaide, School of Medicine and maintains a basic sciences, translational and clinical research programme that strives to inform the development of novel therapeutic approaches for lysosomal and related neurodegenerative disorders; through which, he has been privileged to meet and assist patients and their families impacted by GM2 Gangliosidosis, from Australia and the wider international community.

Nicholas Smith


Kate Ellis.jpg

Kate Ellis is a politician, who represented the Division of Adelaide in the Australian House of Representatives for the Australian Labor Party from 2004-2019.

Kate is passionate about campaigning for the rights of children's access to healthcare and health services.

Kate Ellis


Olivia has an extensive background in both communications and advocacy in aged care, higher education and nursing. Her role as CEO of Parkinson's SA has given her strong expertise in business development, key strategic partnerships, philanthropic grants and communications.

Olivia is passionate about community health and improving the lives of those with neurological diseases.

Olivia Nassaris

RFF logo_Colour_Vertical_Small Tag.png



©2019 by Rare Find Foundation