OUR WORK AND FOCUS
Alongside our counterpart organisations, we strive towards providing a cure for these relentless conditions by supporting the dedicated researchers who are focused on the discovery of innovative treatment methods.
Promoting Disease Awareness
Creating awareness in both the general public and medical community of these GM2 conditions to help promote carrier status screening, prevention and early diagnosis.
Rare Find Foundation is committed to helping Tay-Sachs and Sandhoff children and their families in every and all ways.
We know there are no words to describe the pain and heartbreak of knowing that your child is facing a life limiting condition with no cure.
Although the situation can be insufferable, we aim to support these families throughout and also to help provide a future that has a cure.
Given the advancements in genome sequencing, we are also advocating for access to carrier screening as a way of prevention.
THANK YOU FOR SUPPORTING RARE FIND FOUNDATION