©2019 by Rare Find Foundation

OUR WORK AND FOCUS

Establish a disease registry for GM2 conditions in Australia and New Zealand and run a Centre of Excellence for the Medical community & affected families

Provide support through the diagnosis and beyond for the families and carers affected by GM2 conditions.

As well as advocacy, equipment support and funeral funding

Research

Alongside our counterpart organisations, we strive towards providing a cure for these relentless conditions by supporting the dedicated researchers who are focused on the discovery of innovative treatment methods.

Promoting Disease Awareness

Creating awareness in both the general public and medical community of these GM2 conditions to help promote carrier status screening, prevention and early diagnosis.

Rare Find Foundation is committed to helping Tay-Sachs and Sandhoff children and their families in every and all ways.

We know there are no words to describe the pain and heartbreak of knowing that your child is facing a life limiting condition with no cure.

Although the situation can be insufferable, we aim to support these families throughout and also to help provide a future that has a cure.

Given the advancements in genome sequencing, we are also advocating for access to carrier screening as a way of prevention.

THANK YOU FOR SUPPORTING RARE FIND FOUNDATION