Making a difference to the lives of people affected by rare diseases.

Rare Find Foundation exists to support those affected and their families, supporting research and raising awareness of Tay-Sachs and Sandhoff Diseases.

Young patient Sebby looking to camera

Making a difference to the lives of people affected by rare diseases.

Rare Find Foundation exists to support those affected and their families, supporting research and raising awareness of Tay-Sachs and Sandhoff Diseases.

About the diseases

Tay-Sachs and Sandhoff diseases are related genetic disorders. They occur when the body’s cells are unable to process and clear waste products.

Find out more about these diseases, including their causes, symptoms, diagnosis and prognosis.

Practical information for families and carers

Find out more about the diagnostic journey, practical information on how to care for your child or loved one, the benefits of palliative care, a glossary of terms you may come across, and stories from other families.

How you can help

Rare Find Foundation rely on the generous support from the general public and corporate sponsors to help us make a vital difference to this very important cause. Find out how you can help make a difference to lives of affected families.

What we do

Care and Support

Awareness and Education

Research and Data

Making a difference to those who need it most – help these children and their families to find a cure.